Day 19 – Saturday November 29th 2008

A crying baby is a healthy baby, Britta, Eva’s nurse, told us today.  Well today Eva was being quite the Diva and threw a few big tantrums.  A good sign after yesterday.  Britta said she’s got quite a temper on her!

We both slept well last night which was great – thank goodness for rescue remedy.  When we arrived at 10 Eva hadn’t had any episodes since 5am so we were very pleased with her.  Britta suggested while she was settled we get her out for a cuddle.  Andrew hadn’t worn a button down shirt as he didn’t want to tempt fate so instead he just had to take his t-shirt off! Andrew and Eva had about 45 minutes of settled cuddle time where she behaved except for slowing her breathing slightly a couple of times.  Andrew again felt that this skin to skin time was magical and felt reassured that he could easily touch her back to get her to breath more rhythmically.  He felt so sorry that I had missed out on cuddling 3 days this week as it is such a special time.

Then I was to feed her.  I forgot to check the tube placement and when I put the milk in it came straight out of her mouth and ran down Andrew’s chest.  The end of the tube was sitting in her mouth instead of in her stomach.  Of course I felt awful about this but Britta calmly reassured me that Eva couldn’t have inhaled any into her lungs.  Well young Eva expressed quite passionately her grumpiness at this situation.  I was in such shock that I didn’t think to video the tantrum!  Shortly after, when she calmed down, Britta easily passed another tube ready for the feed. Not long after this she had an episode of  bradycardia and aponea resulting in her dropping her oxygen levels and loosing some of her pink colour.  Britta very calmly returned her to the crib where Eva regained her colour and when placed on her stomach settled very quickly.  Since we had seen this over the past few days Andrew and I were actually not too panicky about the episode.

We fed her safely and without issues then took ourselves to lunch to give Eva some time to rest.  On return Daddy had a dirty nappy to change and she had another feed.  Britta gave Eva her antibiotics through her cannula in her arm.  This was obviously very sore as again she was very upset.  Britta soon removed the cannula, which is good as it was quite red.  The end of her of her tantrum during the removal of her cannula can be seen in a video on Flickr. This involved a clenched fist thumping down on her sheets and lots of crying!

The next big thing for today was that her CPAP mask and tubing was changed.   This gave us a wonderful opportunity to see our precious Eva without a mask or hat for the first time in 2 weeks.  She coped extremely well just lying there without CPAP or any other support.  Britta was ready to give her oxygen if necessary.  Andrew and I both were able to touch her head and feel her hair.  Of course many photos were taken.  Eva’s face and head are quite dented from where the mask is held on tightly to get a seal.  It must feel good to have it off.  Eva’s hair is quite light and perhaps with a reddish tinge!

Eva’s feeds have gone up to 8ml 2hourly.  They go up 1ml every 12 hours and when she gets to 12mls she will stop her TPN (artificial feeding).  They are keen to stop that as it reduces her infection risks.  Then her feeds will increase based on her weight increase. 

Most of you will be unsurprised by the fact that we appear to take many more photos than any other parents.  Our Eva has a well documented stay in NICU.

Today was a maximum of 4 degrees and it’s only November.  I was so impressed that I wouldn’t have to get up in the night during winter but seeing as Eva decided to come early now I get to enjoy the minus degree nights.  This weather also isn’t helping us to get rid of the colds that have been annoying us for 2 weeks.

So overall as you can see the day was better today.  Perhaps I just get tired and emotional by the end of the week visiting on my own.  Also we are have started to accept that these episodes she has are part and parcel of having a premature baby (once the possibility of infection was ruled out). 

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One thought on “Day 19 – Saturday November 29th 2008

  1. Hi guys
    Thanks so much for sharing so openly about your life with Eva and her continued journey. You are often in my thoughts and of course our prayers too. You will probably be receiving Marnie’s mum very soon if not already and I bet that will be a fantastic reunion.
    Lots of love
    Liz
    P.s. Craig is in Dubai again for a couple of weeks so I’m holding down the fort here in London.

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